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Hi guys, and thanks for your concern. I am alive and mostly well, which is to say that I have no new health issues. However, a couple old ones are causing me a good deal of trouble as they relate to working on the layout. One is easily fixed, namely the cataract in my left eye. It will be a couple more months before that gets resolved. Even though it's just one eye, it makes even using the computer, frustratingly difficult.

Unfortunately, the other problem will never go away, which is the neuropathy in my hands. Imagine going through life with oven mitts on. This condition makes everyday tasks, very difficult. Things as simple as reaching in my pocket and grabbing my wallet require a good deal of effort. Once I finally get it, there's the issue of dealing with its contents. To get a credit card out I have to use my thumb nail to engage the raised numbers and slide it out. I have a terrible time at the gas station paying at the pump. I can get the card in OK, but I have a very hard time pulling it out of the reader. Paper money is also a challenge. 

Even using utensils to eat is a challenge. My wife got me a set with fat handles which helps, but there's still a fair amount of fumbling involved. Even finger foods are difficult sometimes I often wear the ketchup when I eat french fries when they slip out of my fingers, and sandwiches usually fall apart in my hands. The bathroom has its own set of problems, I'll just give you  G rated example, a bar of soap in the shower, 95% of the time I drop it at least once. It takes several attempts to get it back, lasting up to a minute per event.

When I look back at how I used to be able to do things just a few years ago, I get kind of depressed. I haven't touched the layout in more than three months, hence no updates, nothing to report. I'm just in a funk, and the trains are at the heart of the problem. It doesn't help that I've been finding the content of the forum very dull for my taste of late. Just like Mr Ed, I will never speak unless I have something to say.

Throw all those elements together, and it's the perfect storm, for my disappearance. As Mallard noted, I have been visiting and reading a little, almost every day. The point is I'm still here, just not talking.

Elliot, good to hear from you and that no new health issue have cropped up just the old pain in the *** ones.  As for not working on your layout everyone goes through some form of that, a lot of ups and downs like a roller coaster. But at least you visit here. Plus you can at least run trains and enjoy them. I also agree with you that the forum has changed somewhat in the past year or so............. Paul 2

Elliot,

I am glad that you chimed in on the thread. I'm sure everyone can agree that we are glad to see that no more issues have arisen. I know that you are dealing with more than the average person would be able to. You show us all not to take the basic things we do daily for granted.

 I haven't been doing a ton with my layout lately and though it's not health related I just haven't been motivated and have dealing with other issues. I come here and many times it at least makes me go into the train room and look around  and think what I want to tackle next and MAYBE run a train. 

You will continue to be in my thoughts and I hope that some relief will come to you when it comes to your current health issues. Now that you have this thread, whenever you go through these type of hiatus chime in and a simple "hey" will suffice. Know we are excited about that monstrosity that you are building but we are more excited when we hear from you.

Dave

Elliot I am very sorry to hear of this.  It seems like life is always throwing us challenges, some more that others.  I've often thought about if I were given a choice of which one of our senses to lose, which one would I chose?  I would never pick my sight or hearing, maybe smelling would be the best choice?  I hadn't thought about our sense of touch or being able to use my hands.   

I haven't done any reading or studying about your problem, but I hope there is solution or relief in your short term future.  I hope that you know that you have a lot of train friends that will be hoping and praying for you. 

Lurk all you want and maybe we can say or do something so enticing that you will be compelled to draft a reply.  If not, please pop in once in awhile just to let us know how you are doing.

Art 

Last edited by Chugman

Thanks for replying.  

Re the forum, it has its ups and downs.  Lots of great posts recently on some tinplate and postwar stuff, but that's not your thing.  You occupy a niche in the hobby - too realistic for the tinplaters, and the scale guys sniff at that third rail (too bad for them!).  You fill your niche quite well, and offer a lot of ideas and inspiration to all types of train guys, if they are willing to open their eyes and minds to what you're doing.  

Hope the health frustrations improve - most people facing your challenges would have curled up in a corner years ago, but you have persevered.  My aches & pains pale in comparison, and when I feel down about them I think of what you have accomplished.

When the layout calls you back, keep up the good work, and we'll be here when you have something to report.  

Elliot,

Your message is a happy/sad one.  I was fearful some rather bad health issue had reared its ugly head, so happy that is not the case.  The vision, I can relate to having had cataracts removed 2 years ago, it was all I could do to use the computer at work.  I wasn't on it as much at home.

The neuropathy on the other hand is tough.  I had an older train friend years ago who had something that caused similar problems.  I do so grieve for you, as I did for him.  

As to the Forum, I think all of us have times when our interests wax and wane.  I have contributed little this year on my layout build because I haven't had time to do much, and sometimes health issues do interfere.  

Please always be conscious that I and many others here are thinking of you, pulling for you, praying for you!

It's beyond frustrating to have your brain tell your body to do something, and it doesn't. I think we all have to deal with our problems and shortcomings. I just hope you find a way to deal with this and lesson the stress to yourself. Don't let it beat you! Assign what you can't do to someone else if possible. Limit the time to keep it fun. Reward yourself with whatever you like to do. Have fun and the people around you will enjoy your company.

I so admire, Eliott, your extraordinary skill, knowledge and insights regarding all aspects of model railroading that you have contributed on this Forum. And, your great enthusiasm you have shared about our hobby on the Mccomas and Tuoy 6 video set many years ago is, IMO, unforgettable. 

As Mark and our other Forum friends have said above, I too am both happy and sad about the health-related news you have imparted to us. We all hope and pray that your symptoms will lessen, and you can be as active as you want to be on finishing your great layout and posting on this Forum.

This thread has inspired an idea for a new one, which I will start shortly, that might be of interest to many of us. It's title will be: Our Therapy. Arnold

 

 

Elliot, I to am happy and sad of your post. I am happy and grateful that nothing new as in health issues has come up. I am sorry about the hand problem as it makes life's everyday task hard some times.

I want you to know as others have said that your a very important part of this forum. I have learned so much for your thread and from your personal help here it is amazing the knowledge you carry with you! Even though I have never met you I would still like to be able to call you my friend! My thoughts and prayers are with you and I hope to see your post in the future! If anything just say HI!

P.S. I started the puzzle but had to stop for awhile, The wife and I are going to get started on it again so I can hang it in the train room! 

Thank You for being such a great guy!

Elliot sorry to hear hands are having issues tammie can relate to your hand neuropathy she has it as well and frustrates her at times. but we are glad that you are okay otherwise. as creative as you are maybe with patricks help you can make an Elliot robot that will do all these things for you on the layout.

 

Eliot, I am also sorry to hear of your troubles. Having hand problems really stinks. I have trigger finger and for a while I couldn’t close my left hand. Tools and other objects would just fall out of my hand but this is nothing compared to what you have. It looks like eventually I am going to need surgery. I got a cortisone shot and it helped for a while but it’s starting to come back. I hope you can get better and somehow find some relief from your problem. I am in awe of your layout and enjoy the updates every month. Get well soon. 

Number 90 posted:

It is certainly disappointing to learn of your health problem, Elliot.  I guess we all have to play the cards we are dealt, but that does not make it any easier.  Many of us take comfort in knowing that you are still out there, and hope that the condition will not end your participation.

Couldn't say it any better, Prayers are with you.

Eliot,  Thanks for letting know your condition.   I will keep you in my thoughts and prayers.  Try to stay as positive as possible.   The negative thoughts and energy, if not checked, only make a challenging situation even worse.   It's not realistic to think that you won't be sad, frustrated, angry about the issues, just try not to lose entire days in the spiral.   

Hi Elliot;

I rarely post, but do often check the forum, and always look for your updates. Something you should know about me to understand why I'm posting now is that I don't consider myself a "train guy" (whatever that means). I didn't grow up building layouts, prototypical operations or gear isn't a priority for me, and I only have room for a small Christmas setup. Yet I love seeing and reading about all aspects of this hobby. There was a time when I was as deep into RC planes as you are trains (must be a connection there somewhere). My point is that if you can inspire someone like me than you are a great asset to the hobby. I hope this post and the feedback you receive from this forum can return some of that inspiration to help you through your challenges.

 

Thanks, John W

Thank you for all your thoughts and well wishes guys, it really means a lot. On top of my chronic problems, I have been suffering with the "seasonal crud" for the last three weeks. I think I'm finally getting better, but it's really lingering. 

On a slightly happier note, I did look at the new MTH catalog this morning. Unfortunately, there wasn't a whole lot in it that I was interested in, though that's not really uncommon for me, because I don't buy their engines. I want no part of DCS. I have made a few exceptions over the years, but the items have to be really special to warrant conversion to TMCC. I used to do conversions myself, but I don't think my hands are up to the task anymore. The only things I usually buy are premier cars, and the offerings were kind of thin for my taste. Real toss up as to whether to place an order or not.

I also made a post to another topic for the first time in almost seven weeks. It was about Yahoo groups. I just had something to say on the subject.

Darn, hand problems are tough to deal with. I wouldn’t say “never” because there’s stuff in the pipeline that may help. In case you want some hints from some hands that went prematurely arthritic (lupus) about forty years ago...

 You may feel silly to start with, but one of those nylon net puffs and “body wash” are a lot easier to deal with than bar soap. (Try the Old Spice kind.) The puffs usually have a wrist strap on them so they’re harder to drop. 

French fries on a bad day? Stab them with a fork. Seriously. Some things are too delicious to stop eating. Fat-handled forks help, but the kind where the handle is a big loop is even easier. Crosscut sandwiches with cocktail picks (better still, tiny stick pretzels) through them are easier to handle. If they’re still a pain to deal with, switch to flatbread, tortilla wraps or pita pockets. (Everybody makes a mess with burritos, so they don’t count. By the way, soft tacos are easier to hold onto than crunchy ones when you aren’t sure how hard your hands are clamping down.)

See if you can find an “anti-pickpocket” wallet you like. They have a grippy outer layer. If you can find one with slightly looser card slots, like the RFID-blocking ones, that will help. A lot of stations now have “tap to pay” where your card never has to go into the reader, which would solve that problem. Nothing is gonna make my paws small, graceful or strong, but they still work for now. I hope yours will be useful for a long while, too.

—Becky

 

JohnActon posted:
Big_Boy_4005 posted:

 

Unfortunately, the other problem will never go away, which is the neuropathy in my hands. Imagine going through life with oven mitts on. This condition makes everyday tasks, very difficult.

 

Elliot, I confess to no first hand experience on this though I have read in more than one place that hyperbaric oxygen therapy is an effective treatment for neuropathy.  Have you discussed this with your physician ?  Might be worthwhile even if it just slowed the progression.   Have you tried one of the type by voice apps ?  Again I haven't tried them but read that they are light years ahead of where they were five years ago.   Understanding your problems with typing please don't feel compelled to respond to this just thinking out loud about your problems.                  j

 

Hi Elliot, I hope your doing better! The wife and I got that puzzle you sent me done and as soon as I get some trim boards I will be making a frame for it! I hope you can find something for your hands, Like some have stated Medical marijuana might be an idea.

Elliot and Dave Z, just to give you a little in site on hyperbaric oxygen therapy. I just went threw 7 weeks of it here in Washington State. It was required from my oral surgeon before he would remove my rotting teeth for all the Chemo and radiation I had.

I hope your sitting down for the next information I am about to give you. The charge here in Washington for  hyperbaric oxygen therapy was $2,244.00 per visit plus some other office charges. At the end of 7 weeks the total charges before insurance was a little over $85,000.00 

Just wanted to share this information with you guys!

I hope things get better for you Elliot! If anything you can still go down and run trains!

Last edited by mike g.

Thanks Mike. Sorry to say, the hands are as bad as ever. Today's adventure was getting the leftover meatloaf out of the fridge. My wife had placed it on top of the package of eggs. I barely got the heavy pan out, but in the process, I somehow snagged the egg crate, which fell about three feet. Through the miracle of modern science, I lucked out, and as far as I could tell, none broke. Prior to that, I didn't think much of that flimsy plastic container, but there seems to be some serious engineering there. 

Medical expenses are insane. Dialysis is in the neighborhood of $2000 per session, three times per week, every week, forever. Fortunately, I have good insurance, and after I pay for the first one to meet my deductible for the year, I don't see any more bills. The downside is my insurance doesn't cover dialysis if I leave Minnesota. Back in July, we had planned to chase the Big Boy one last time, out to North Platte. Everything was set, until we found out my insurance wouldn't cover me on the road. That was depressing to say the least. We're going to try shopping for insurance again this year. I hate that. I could go on medicare by virtue of being on dialysis, but there are a couple problems with that. One, it won't cover my wife, and two, the donut hole, making it potentially more expensive, than private.

Egg update: My wife reports, I did break at least one. Oh well.

Last edited by Big_Boy_4005

Elliot, I am sorry that your hands are not doing any better, I wish there was something they could do for you! I know what you mean, I know what you mean, insurance companies get you one way or another!

On the egg report, sure sounds like you still got lucky!

I will get a picture of that puzzle and send it to you! Thanks again!

Well guys, breaking an egg is way better than breaking a leg. Take it from someone who has done both.  I see an omelet in my future.

Back in my college days at the University of Colorado, every year the engineering school held an event, with a number of contests that the students could participate in. There was a mousetrap powered vehicle contest, which used the power from the spring to propel a  small lightweight car max distance. If I remember correctly, there was a concrete canoe race. But the one that I liked watching was the egg drop. Students would design containers to hold an egg. They were then dropped from the eighth story of the engineering tower. There were actually a number of winners.

Forty years later, they're still doing it.  

Big_Boy_4005 posted:

Medical expenses are insane. Dialysis is in the neighborhood of $2000 per session, three times per week, every week, forever. Fortunately, I have good insurance, and after I pay for the first one to meet my deductible for the year, I don't see any more bills. The downside is my insurance doesn't cover dialysis if I leave Minnesota. Back in July, we had planned to chase the Big Boy one last time, out to North Platte. Everything was set, until we found out my insurance wouldn't cover me on the road. That was depressing to say the least. We're going to try shopping for insurance again this year. I hate that. I could go on medicare by virtue of being on dialysis, but there are a couple problems with that. One, it won't cover my wife, and two, the donut hole, making it potentially more expensive, than private.

 

That is amazing to hear Elliot, never expected insurance wouldn't cross state borders. Time for the tax payers to get the same healthcare as it's representatives voted for themselves?  

 

It's a bit of a long story, but here goes. I always liked the idea of the ACA (Obama Care). At the time, I was getting insurance through a state program because every private company refused to cover me, the "high risk pool". Great coverage too. Just because it was a state run program, didn't mean it was cheap, I paid plenty in premiums, but at least I was covered.

When the ACA came along, it removed the pre-existing condition clause from private insurance, meaning they could no longer deny people like me.. As a result, the state program closed down. We turned right away to the company that had been administering the state program. It wasn't much more than what we had been paying, and the coverage was still great.

After two years with them, that company had a contract dispute with the group of doctors that I use. Keeping my doctors was the highest priority at the time, so we switched companies. The original company ultimately resolved the contract dispute, but we had already switched, to be safe. We never had any problems with the new insurance.

It was late in the first year of the new insurance that I started dialysis. Last year, we were going to take a five week long road trip in September and October, but in May, I stepped on a nail, and we had to cancel the trip. We would have found out last year that we had this problem. This problem has a name, it's called "out of network".  So now we have go shopping again. Medicare, would probably allow me to travel, but there's  good chance that it will be more expensive out of pocket, than private.

Bottom line, at the time we signed up with our current company, we never thought to ask about this stuff. The problem only became obvious last July

good morning Elliot sorry to hear life has some ruts in the road for you. as to the insurance thing yep one has to read more so now than ever as most insurance is the in network type I never liked it and personally the ACA cost me 3 times the normal premium so a fan I am not. so why not see if old insurance will cover you out of state and if cost is not bigger why not switch back?

on side note the trees are losing there leaves so I can see more of the wye at division street I contacted depot about west side camera they were going to fix it that was a month ago! so I'm selling raffle tickets for when it comes back online   "laughing loudly on that one! "

take care 

Last edited by StPaul
Big_Boy_4005 posted:

Well guys, breaking an egg is way better than breaking a leg. Take it from someone who has done both.  I see an omelet in my future.

Back in my college days at the University of Colorado, every year the engineering school held an event, with a number of contests that the students could participate in. There was a mousetrap powered vehicle contest, which used the power from the spring to propel a  small lightweight car max distance. If I remember correctly, there was a concrete canoe race. But the one that I liked watching was the egg drop. Students would design containers to hold an egg. They were then dropped from the eighth story of the engineering tower. There were actually a number of winners.

Forty years later, they're still doing it.  

In the early days of model rocketry they had a similar competition, where you had to launch an egg on a model rocket, and when the rocket eventually landed (via parachute, it is against rules to allow a nose cone to come down without some sort of parachute or other device), it had to be intact. People got pretty good at it, though the fun kind of came off when commercial firms produced cargo containers for rockets that could do this (some smart alecks of course set the challenge of launching a rocket like 2000 feet, have the cargo container come down on its own without any kind of parachute or other kind of thing to slow it down, and have it land with the egg intact. Never heard if they were successful, would have taken clever design to allow it to drift down like that and work. 

Out of network limitations frequently involve HMO or Medicare Advantage budget based policies.   They can be great for folks who do NOT travel to distant train shows and chow down on  sausage out of network.  By contract, HMO & Advantage plans only cover emergency medical services.  On unique occasions we have been able have coverage extended when out of network with something like an acute cardiac event putting a person  in a distant I.C.U.

Most Personal Choice style plans cover nationally.  All medicare A & B plans cover nationwide medicare providers. 

Plan D.  It is very important to examine all of the various drug companies offered in your area and have your physician review the particular scheduled meds covered.  This is a critical consideration.  Can have big $$$$$ issues.  It will really impact your York budget if you choose blindly.

Urban hospital and rural hospitals have a vastly different expense experience  across the board.   Hence long time ago people would get medical coverage in an area where the premiums were cheap then try to use it in expensive urban hospitals.  That is called insurance fraud.  You can wind up not having access to your trains for a while.

Yo Elliot you should have a smile on your face as trees are dropping leaves so you can see all at division street cam and from roadway again!

hope today is better for you and guess the days of shorts and tee shirts have departed as I see its calling for 31 degrees for the high hmm do I hear trains and hot chocolate time!

I am greatly saddened to hear this. I didn’t know Elliot personally but I did know his posts and the videos he was in back in the days when I first got back into this hobby. That was the late 90s. Please correct me if I wrong but I believe Elliot was in at least two (I think TM) videos. One where he showed his train display at a mall in Minnesota and another where he had a portable train layout that he towed to different events. He seemed like a really great guy in his posts on the forum and it is a big loss to the hobby and all his friends and family that he is gone. I will never forget the saga of his “dream/nightmare” layout. You will be missed Elliot.

I just read through this entire thread and was so sad to read about the challenges Elliot was facing, but encouraged by the support shown by his friends on the forum--all resulting from a simple "Have you heard from?" type of inquiry. I hope all the replies provided some encouragement and that he turned to them many times over whenever he was feeling down. My condolences to his friends and family.

Cross posting my comment here from another concurrent thread that also addressed Elliot’s death:

15BE459E-F0C0-4CE6-9696-3EC8CC80E031


This hits hard.

Elliot was an important figure to me when he opened EnterTrainment, an O gauge layout attraction, in the Mall of America in Bloomington, MN, in August 1992, when the shopping center was unveiled.

When I connected with Elliot in person in 2016, I was happy to invite him to visit the Milwaukee Lionel Railroad Club in New Berlin, WI, a kind of payback for his efforts 20 years earlier. (That’s me on the left and Elliot to the right in the photo.)

I figured I would one day follow up with a visit to his Stillwater, MN, home, but his subsequent health struggles and my own scheduling challenges made that more difficult. Now I regret not making it a priority.

Elliot was a fun guy. How could I not like him?

My condolences as well.

Here’s the other thread:

https://ogrforum.ogaugerr.com/...3#166558866694262713

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